***CORRECTION: Livestream is Saturday, August 30 from 8:00-9:30 pm CDT***
This weekend, I will be joining Aaron Cobb on the Theologues podcast to discuss his book Loving Samuel: Suffering, Dependence, and the Calling of Love. (Full disclosure: Aaron is a former classmate of mine in the PhD program in Philosophy at Saint Louis University.)
The book tells the story of Aaron’s son Samuel, who was diagnosed with Trisomy 18 in September, 2011. Most Trisomy 18 babies die in utero; of those who are born alive, 90% will die within the first year. Even the tiny minority who live past their first year face significant challenges and handicaps.
Despite this difficult prognosis, Aaron and his wife, Alisha, chose to carry Samuel to term. He was born in January, 2012, and died five short, difficult, precious hours after his birth. Aaron comments:
Fulfilling this vocation was difficult and required a choice to embrace the suffering it would engender. But we are convinced that this choice is part of what it means to love; to choose to love is to open oneself simultaneously to both joy and suffering. Thankfully, a community of fellow sufferers provided the gifts and grace of friendship, seconding and sustaining our choice. Fostering courage and hope, they made it possible to live well in the midst of our suffering.